Everything Youโ€™ve Always Wanted to Know About a Mutant
But Were Afraid to Ask

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  1. Let’s get that first question out of the way. I am related to Roy Orbison. 1st cousin twice removed on my father’s side. ๐Ÿ™‚ย 
  2. I have a congenital heart defect. 1 out of every 100 babies are born with one.
  3. I have had four major open heart surgeries and too many other things to list properly. My condition is called 22q11.2 Deletion Syndrome aka DiGeorge Syndrome. For years doctors and nurses thought that because the symptoms vary so widely from patient to patient they were all different disorders. Most of my doctors and specialists missed that I had it. My husband, an engineer, pieced it together and insisted that I have genetic testing. I was diagnosed with DiGeorge through the FISH test at age 25. I’m the only one in my family with this condition, which is why I am a mutant. And therefore awesome. ๐Ÿ˜€ย 
  4. Due to all the surgeries, I do have PTSD and anxiety for which I’m in counseling. But each day is a new day.ย 
  5. The mantra “if I can, you can” doesn’t always apply. Some people can run marathons – some people can’t. ย And that’s okay! The world needs differences or it would be pretty boring.ย 
  6. I love baking! I’m not very good at decorating the cakes just yet, but I’m learning. ๐Ÿ™‚ My favorite tip right now is the star one. I love making my own frosting. Bring on the buttercream! I’ve never worked with fondant, but plan on trying that in the future.ย 
  7. I crochet. ๐Ÿ™‚
  8. I babysit – most of the time for free. ๐Ÿ™‚ย 
  9. I love to cosplay. I’ve always loved dressing up in character. I have a very awesome princess cloak and Supergirl outfit currently. ย 
  10. I am in music lessons. Right now studying the violin and learning the Suzuki method. I’m 35, and I just started lessons this year. A little later than most folks, but you’re never too old to learn something new. ๐Ÿ™‚
  11. In high school, due to my disabilities, I was able to get an internship with NASA through a program called F.A.S.T., which stood for Future Assets Student Talent. It was at NASA that I first learned how to use a typewriter. I worked there for three summers in a row. Not everyone gets to say they worked for NASA. ๐Ÿ˜€ย ย